Hospital follow-up with GI . . . .

I saw my GI on Monday for my post hospital follow-up. I think my GI is a hard working man, he looked just as tired and stressed as i was or maybe because it was an 8:00 am appointment? ūüôā Anyway, he reviewed my clinical summary from the hospital and was surprised that the hospital GI removed Apriso from my medications. ¬†Since it was the only mesalamine medication I was taking, he stated we will need to put you back on that medication. ¬†I immediately asked why since the GI at the hospital stated it didn’t work. He responded, “I think you have Ulcerative Colitis, and you’re currently taking 40mg of prednisone, I want to get you off the prednisone¬†sooner than later. ¬†We need to do a trial and error and find your long term drug.” So far 2 out of 3 say I have UC , I feel like I’m getting closer to a confirmed diagnosis, yay!!

Then we talked about future treatment. He brought up Humira and ¬†Remicade again, but stated he wants to try an immune modulator¬†instead. In the meantime¬†he¬†wants me to get tested for Hepatitis and see me every week?!?! I said “What!” He said we have to tackle this head on, I don’t want you to go back to the hospital.

Sighs . . it’s bittersweet. I’m fortunate to have a GI that cares, but my PTO hours are getting low. And I can’t afford these co-pays, but I am getting closer to my out of pocket maximum with Cigna!! So once I hit that amount it should be easier? *fingers crossed*

As always I remain hopeful, taking one day at a time ūüôā

3 thoughts on “Hospital follow-up with GI . . . .

  1. Hey! I got your comment on my UC blog, which led me to yours. I notice you also live in Maryland. Right now I am dealing with total douchebag GI docs in the Bel Air/Havre de Grace area and I am trying to find a decent one. Since you mention you found a good GI doc in this post, I wonder what area are you in?

    Also, I just wanted to say it is nice to “meet” you. This IBD shit…we need all the support we can get. It helps me to read through other people’s experiences.


    1. Hi! Nice to “meet” you too! I live in Montgomery County and my GI practices with the Capital Digestive Care center they serve the DC metro area. One of my friend’s younger sister was diagnosed with Crohn’s 7 years ago, she stated the John Hopkins IBD program was very helpful for her, and that is slightly closer for you. I’ll reach out to her and see if she knows any GIs closer to your area.


      1. Thank you so much! I have heard about John Hopkins, but I am pretty sure my insurance will not cover that. I have mostly been using the Doctors with Upper Chesapeake Health…but I feel like they could really not care less about my colon or anything else related to me…besides if I can pay my bill or not. There is one guy who is alright, but generally, all they do is throw drugs at me.


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